A listing of all participants in the two meetings as well as those who provided written responses at any point in the process is found in appendix E. The Committee reviewed all of the input received from the hearings, meetings, letters and other communications. These discussions led to the issue of needing DHHS staff dedicated to participating in the meetings of numerous data standards committees, advising the Department, and producing further iterations of data elements as future agreement is reached. It is the expectation of the Committee that the health care field will find these recommended data elements to be fundamentally important for any collection of person and health care encounter data and will consider these elements and standardized definitions for inclusion in their data collection efforts wherever possible. Specifically, the Department charged the Committee to: In developing a strategy for accomplishing these tasks, the Committee described a context in which the project would be undertaken that included the following issues: The following list of data elements contains those elements selected for the first iteration of this process. Living/Residential Arrangement - The following definitions are recommended by the NCVHS: Multiple responses to this item are possible. Health Care Practitioner Specialty* - As part of the NPI/NPF system, HCFA has identified a very detailed list of specialties for health care practitioners. The Committee encourages the Department and its partners to give high priority to conducting evaluation and testing on such elements and also seeks to alert organizations developing standards or data sets to leave place holders for their inclusion. . Ronald Carlson Current or Most Recent Occupation and Industry 2/, 16. At the October 1995 meeting of the NCVHS, a session was held at which the Department of Veterans Affairs, the Georgia State Department of Health, and others, demonstrated their institutions' integrated financial, clinical, consumer, and public health information systems that are currently in place or being tested. The currently recommended coding instrument is the ICD-9-CM. Systems may also choose to collect other identifiers (e.g., tax number), which they can link to the NPI. In these cases, it is possible that the data items, such as person characteristics, are part of a more basic file kept by the organization, and the information for that file was not included. 42. HBO and Company. Performance monitoring and outcomes research are two additional areas that are currently hampered by the inability to link data sets from various sources due to varying data elements and definitions. Discharge Date (inpatient) - Year, month, and day of discharge as currently recommended in the UHDDS and by ANSI ASC X12. Also, describe, to the extent possible, the provision of drugs and biologicals, supplies, appliances and equipment. The Committee works closely with the National Center for Health Statistics, the Agency for Health Care Policy and Research, and the Health Care Financing Administration (HCFA). An example of this could be NAHDO which could undertake to work with its members. Armed with the extensive listing of potential data elements culled from the Compendium, in September 1995, the NCVHS contacted approximately 2,000 individuals and organizations in the health care utilization and data fields to seek their input in identifying those basic elements most in need of collection and/or in need of uniform definitions (appendix B). It is possible that the description of functional status may entail more than a single measure, thus needing space for more than one measure and/or an additional element to document the scale used. New York, using the last 4 digits of the Social Security Number, with other characteristics (such as date of birth), indicated a match rate exceeding 99 percent. The database will contain payer names, billing addresses and business information. Center for Mental Health Services, Corinne Kirchner, Ph.D. The Uniform Hospital Discharge Data Set, or UHDDS, is used for reporting inpatient data in acute-care, short-term care, and long-term care hospitals. It is planned that enumeration of Medicare providers will begin in calendar year 1996. Consensus has been reached on definitions for the majority of these elements; for others, there is much agreement, but definitions must still be finalized; and for a third group, additional study and testing are needed. No decisions have been made by the Department on any of these recommended revisions of either the UHDDS or the UACDS. The National Association of Health Data Organizations has also opposed such an inclusion. By January 1998, all California State Department of Health data bases will contain five data items to facilitate linkage. We use cookies to ensure that we give you the best experience on our website. In 1989, NCVHS approved the UACDS, recommending its use in. Maine Health Information Center, Florence B. Fiori, Dr.P.H. The Committee recommends the following actions specifically related to the core data elements: 3. Work on this topic is currently ongoing in the NCVHS Disability and Long-Term Care Statistics Subcommittee. Some of these included information on health behaviors, such as smoking and alcohol consumption; information on preventive services; language ability; severity of illness indicators; provider certainty of diagnostic information; information to link a mother's and infant's charts; information on readmissions and complications, to mention a few. ANSI ASC X-12 (Accredited Standards Committee), WEDI (WorkGroup on Electronic Data Interchange). compare data for inpatients and ambulatory patients in the same or among other facilities. A listing of the Core Health Data Elements grouped by level of readiness for implementation is provided after the section with the definitions of each data element. Patient's Expected Sources of Payment 1/. American Association of Retired Persons, Peg Douglas Dave Baldridge The element also provides information on patient origin for health resource planning, and for use as an indirect measure of socioeconomic status. As highlighted earlier, the Committee has identified a number of areas that should be considered for implementation by the HHS Data Council. It might not be feasible to expect the record to be updated to include payment data when it becomes available. Health Care Financing Administration, James Tierney NYLCare Health Plans, Inc. Eugene Stanton 9. New York State presented testimony that indicated that the last four digits of the SSN combined with the birth date were capable of linking data to a very high degree of probability. A key distinction to be ascertained in "residential arrangement" is whether organized care- giving services are being provided where the patient lives. National Institutes of Health, David . It was thought that this was one of the reasons why some organizations, especially private employers, declined to participate. Agency for Health Care Policy and Research, Simon P. Cohn, M.D., M.P.H. Just trying to obtain data from some large organizations was quite difficult; responses were not received in a timely fashion, and when received, the data layouts often were computerized lists rather than lists of data items with their definitions. Hartford Health Department, Clem McDonald, M.D. Another form would be through an organization that already has a WEB page; several organizations indicated that they would be willing to test the sharing of this information through their Internet sites. Centers for Disease Control and Prevention, Lynn E. Jensen, Ph.D. B.Discharged/transferred to another short term general hospital for inpatient care Other data items are related to a specific episode of care and will be provided at each encounter. Location or Address of Encounter (outpatient), 21. The identification, definition, and implementation of standardized data in the health care and health care information fields are long overdue. G.Discharged/transferred to home under care of a Home IV provider A lack of footnote indicates that the element is ready for implementation. These elements apply to persons seen in both ambulatory and inpatient settings, unless otherwise specified. Southern California Public Health Association, John R. Lumpkin, M.D., M.P.H. Updates of activities in each of the agencies are presented to the Committee on a regular basis. This project has brought together efforts from several state agencies, including education (for the school data), agriculture (the source of WIC data in some states), as well as health departments. In addition, information was solicited by the NCVHS through two large-scale mailings, and public meetings were held with agencies and organizations which are currently collecting health data sets. Patient's Expected Sources of Payment - The following categories are recommended for primary and secondary sources of payment: 40A. Sex Male or female 04. Also in March, a consultant to the NCVHS updated the World Health Organization on the core data element activity and returned with input to the process. Although there is agreement that "payments" or "costs" are needed, most participants agreed that it is virtually impossible to collect these items consistently across time and locations. Information on multiple diagnoses is important for developing severity indexes and assessing resource requirements and use. 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American Occupational Therapy Association, Kitty Werner Commonwealth of Virginia, Department of Medical Assistance Services, William R. Taylor, M.D., M.P.H. American Medical Association, Zili Sloboda, Sc.D. Several organizations have volunteered to facilitate dissemination and feedback of the core data elements project. Current or Most Recent Occupation and Industry - This data item is very useful to track occupational diseases as well as to better define socioeconomic status. Response was significant and positive to the Committee's request to review a set of core data elements that were identified after a series of hearings and other information- gathering efforts were completed. Colorado Hospital Association, Nancy Breen, Ph.D. The Committee recognizes the need for uniform, comparable standards across geographic areas, populations, systems, institutions and sites of care to maximize the effectiveness of health promotion and care and minimize the burden on those responsible for generating the data. Of either the UHDDS or the UACDS data in the Health Care Financing Administration, James Tierney NYLCare Plans..., especially private employers, declined to participate also choose to collect other identifiers (,! Indicates that the element is ready for implementation by the HHS data Council regular.!, tax number ), which they can link to the core data elements.! Or among other facilities `` residential Arrangement '' is whether organized care- giving are! Florence B. Fiori, Dr.P.H otherwise specified private employers, declined to participate enumeration Medicare. Therapy Association, John R. Lumpkin, M.D., M.P.H use cookies to ensure that give. 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